Tuesday, July 31, 2012

The Banging Bug

OK if you have kept up with us the past week we were on vacation at Tishomingo State Park in North Mississippi, it was great.

The first night there we made a campfire, there was a bug banging into the cabin light~so Noah named it the "Banging Bug"  of course.  He was more interested in the banging bug than the campfire.  So it was time to settle down to go to sleep and Noah's asked Dad to tell him the story of "The Banging Bug".  Dad said to me it couldn't be Cinderella or the Three Bears something I knew~so he had to make one up.  He did well for an impromptu story time.

We LOVE going here to get away the Natchez Trace is right there by the park here is a picture of a sunset on the trace...BEAUTIFUL!

Friday, July 20, 2012

Only in Tennessee.....

WOW we are finally catching up with the times hopefully; Tennessee now has an Autism Plan!!  I emailed the TN Autism plan to request information (what can I do in my area) and to be put on the mailing list as new updates are released.  Great I am thinking FINALLY, something will get done to increase awareness, educate the public, insurance reform (we are one of the few states that still need insurance reform for autism therapies).

I go the Mid-South Autism Conference this week, and guess who has a booth in the exhibition hall, the Tennessee Autism Plan.  So I approach the table and introduce myself, the gentleman at the table introduces himself, so I remind him that I emailed them a couple of weeks ago & he remembered my email and seemed happy that I had contacted him. He was very friendly & seemed genuinely concerned about what I was saying. So just in conversation I ask how long have you been in this position, he tells me since March.  So the next question I have is of course, what is your connection to autism?   he said that he really did not know much about autism, but he was learning.   WHAT you’re kidding me right!! WRONG he was not kidding.  For the past five years he has worked for one of our Memphis Representatives as a legislative assistant.

I guess I am still in AWE that our state would put someone in a position that knows nothing about the disorder they are representing.  Now Tennessee also voted last year to give Autism Awareness a “day”, AWESOME right, NO ONE will tell us what day!!!

I guess parents of children with autism in the great state of Tennessee will continue on the same path we have been on, a lonely road with very few resources at our disposal, lack of support systems in place for our kids, and a need for more awareness, education and understanding.  Come on Tennessee let’s get on the game and help these individuals and their loved ones with autism succeed in life!! 

Monday, July 16, 2012

The Teen Who???

I think the boy tries to find difficult things to obsess about.....the show Teen Titans it ran from 2003-2006, Cartoon Network shows an hour of it every night.  Noah will do his research; did you know there is a Teen Titans Wiki I can provide the link if you need it LOL.  So all the "Titans & Honorary Titans" have a communicator.  Well to no surprise guess who wants a communicator...do you know difficult it is to find one since they don't make them anymore!  Well he found one a e-Bay still in the package, I didn't have the money at that time.  He goes to look it up last week GONE!!!

We searched EVERYWHERE for one on the Internet, he found one Thursday on e-Bay it is used and it cost MORE than the one in the package.  He is SO excited it should be here today and he thinks he will be an "honorary titan"!  I will keep you posted with some pictures this afternoon....and the excitement builds.....

Friday, July 13, 2012

Top Five Reasons to Never Piss Off an Autism Mom by; Laughing Through the Tears

This post is from the website Laughing Thriugh the Tears.
Post from Laughing Through the Tears Top Five Reasons You Should Never Piss Off an Autism Mom 21 Friday Oct 2011 
Posted by Lisa in LISA'S POSTS ≈
We’ve all been there.  Every autism mom has had at least one encounter with some insensitive jackass who insulted our children or criticized our parenting.  It might have been the perfectly groomed soccer mom who said your child was merely spoiled, or maybe the old biddy that told you to take your screaming kid outside even though you were already dragging him out the door in a Fireman Carry, or maybe just some random mean guy who muttered, “This is why I hate kids” under his breath while your child happily flapped past him.

Usually we just have to mention “autism” and the critics slink away, embarrassed and with their tails between their legs, but every now and then you meet somebody who is such a huge asshole they don’t care if your kid is autistic, they just care that your child’s noise/stim/existence is annoying to them, and they don’t hesitate to tell you about how obnoxious your child is and what a terrible job you’re doing raising him.
Sometimes their callousness shocks us silent, and we sit in the car afterward, thinking of all the retorts we could have made.  Sometimes we take the higher ground and walk away, and sometimes we dig in and defend ourselves. (And sometimes we defend ourselves loudly and with many obscenities, but that bitch in the bookstore deserved it!)
These people who attack us are horrible because they have no empathy.  They’re shallow people who probably lead miserable lives devoid of depth and meaning.  They need to learn compassion and respect, but mostly they need to learn to fear us, because autism moms are not to be trifled with.
 Top Five Reasons You Should Never Piss Off an Autism Mom
Five.  We’re Already on the Defensive
What?  You think you’re the first person to think I’m a bad mother? Get in line.  People have been assuming I’m a bad mother for the last five years.  I chew up people who think I’m a bad parent for breakfast. You think there’s something wrong with my kid?  No shit, Sherlock – this panel of physicians and psychologists agrees with you.  Tell us something we don’t know.  Have something new and clever to add?  No? NO?  I didn’t think so…
In other words, we have experience with assholes like you.
Four.  We Are Not Socially Well-Adjusted
We were real people once, and we will be real people again someday, but right now we’re living on the fringe of polite society.  We have cut ties and discarded the family and friends who couldn’t handle our situation.  We all suffer from severe PTSD. Our houses are messy, our surfaces are sticky, and we know the words to way too many Wiggles songs. We clean up disasters that you couldn’t even begin to contemplate.  We live in semi-isolation, trying to have philosophical conversations with children who only know 18 words.  We wear yoga pants all day. Our lives are not like other people’s lives. Do you really want to make us angry? Or do you want to give us a really really wide berth and back away slowly because you’re scared of what we might do if we snap?  Yes.  Good choice.
Three. We Know How to Fight
Autism moms know how to fight because we practice. We fight all day long.  We fight with doctors about treatment, and then we fight with insurance companies to get it paid for.  We fight with the state over services and we fight with schools about our IEPs.  We fight with our families who won’t come to visit us anymore and we fight with our husbands to let off steam from all the other fighting we’re constantly doing.  We fight with our children to make them keep their pants on in public.   Do you think for a second that we would hesitate to fight with a complete stranger who was totally asking for it?
Two.  We’re Already Angry
Autism moms carry huge amounts of unprocessed rage just below the surface.  We’re mad at god or the universe or fate or whatever it is out there that gave our children autism.  We are furious at the cards we were dealt and indignant that such a horrible thing had to happen to our children.  We are angry about the loss of the child we were supposed to have, and we never truly stop mourning.  We’re angry at the doctors who didn’t catch it early enough and also at the doctors who did.  We hold a grudge against anybody who ever failed us as we tried to make sense of this chaos, and we’re also furious at ourselves, because we constantly feel like we’re not doing enough to help and we’re secretly afraid that it might somehow be our fault in the first place.  We are already walking bundles of resentment…do you want to be the straw that breaks the camel’s back?
One. We’re Sleep Deprived
Some of us haven’t had a good night’s sleep in years.  Between the stress, depression, anxiety, and the kid who wakes up screaming for popsicles at 3 a.m., we’re all beyond exhausted.  We’re muddled and short-tempered and irrational and crazy.  Like ax murderer crazy. Like Mel Gibson crazy. There are all sorts of studies linking sleep deprivation to psychosis and that would probably hold up in court if I decided to assault you.  Keep that in mind the next time you fail to keep your opinions to yourself, and beware the autism mom.

In an effort to keep autism mom vitriol in a nice contained space so everyone can be safe, we invite moms to use the comment section to vent about the people that piss you off.  Tell us what you said (or what you wished you had said) or rant away…we’re pleased to be able to offer this public service to keep the rest of society protected.
Click here to find out more!
 This ia a direct link to the post http://laughingthroughtears.com/2011/10/21/top-five-reasons-you-should-never-piss-off-an-autism-mom/


Tuesday, July 10, 2012



  The faces behind the feet, ADORABLE.

Super Savannah

Flying Noah

Do I jump in??? HMMM

Monday, July 9, 2012

He doesn't want to be 10 years old anymore...

he wants to be 9 years old again!!! It's been one of THOSE days yuck!!!  He has been crying & whining ALL DAY.  He comes to me this afternoon crying...he says, "I don't want to be 10 anymore I want to be 9 again."  So my having the "super powers" that I have, I said a magic word (not sure what it was) and POOF he was 9 again.  So there that stopped the meltdown that was coming.

He goes in the kitchen and tells his Meme that he is 9 years old (she doesn't know anything about the "mommy magic" I just did)  She responds, "No your 10."  Noah tells her, "My Mommy made me 9."
You never know what "powers" you possess until their needed.

Sunday, July 8, 2012

Pictures of Our Life with Autism

Dad & Noah I LOVE this picture!!
We were at Mousetail State Park in Tennessee.
Here are some pretty cute pictures of our life with autism, those of you who live with autism will totally understand the significance of these!!!

These are some pictures from our last trip to Nashville to go to Vanderbilt Children's Hospital!!

 This is the view from our hotel LOTS of construction in downtown Nashville!!
Nashville Frogs (at least that what Noah calls them)

Love the one with the coconut top on!!
We stopped at Mousetail State Park on the way home from Nashville last month, we waded in this stream, Noah ended up making a "Rock Castle"!!  Check it out!!

This is MAJOR castle construction going on here!!!
Here is the completed project "Rock Castle"!!!
We dyed some rice different colors just for kicks and made some art from it!!  Our Masterpieces!!
Angry rice face!!! GRRR!!!
Totally AWESOME!!

   He HAD to have this for his birthday it's called Destiny's Bounty from Lego Ninjago!!!
$80 Ninjago Ship took mom 3 hours to build, guess what??
he doesn't play with it HMMM!!
Dad had to put some concrete down yesterday to even out a spot in the backyard, Noah was curious, of course.  Dad let him do a footprint, I was cleaning the pool and look over and he was WRITING IN THE CONCRETE uh oh!!!  I told him to stop.... he wrote his name!!  We were so proud of him it is a BRANDON LANDMARK to forever remain!!!
Here it is!!!!  The landmark!

His footprint, he left one on my heart too!!

Friday, July 6, 2012

What are LOVERS?? OMG!

OK he is usually great at using new words and phrases in context.....HOWEVER he said to me the other day ,"Spongebob & Mr Crabs are lovers.". Yes LOVERS!!! I replied, "they are not lovers Mr Crabs is Spongebob's boss". He says,"ok mom I understand". So then he said, "well what is a lover then??". OMG. So I tell him that mommy's and daddy's are lovers RIGHT!!!! That should do it. He tells meme (grandmother),"mom & dad are lovers". You should have seen the look on her face PRICELESS!! Now he will say to me, "I will be faithful to your love!!". He will ask me, "will be together for eternity??" what do you say to that, I answered of course we will!!!

Wednesday, July 4, 2012

Crab Legs, Where are Their Faces???

Summer is SO much fun, it is SOOOO hot though... I am so thankful we bought that pool last summer that was the smartest $300 I have ever spent!!  I am trying to catch one on clearance this summer and save a few $$$.  Anyway we have had a great week, I have been super busy with school but we are still going out to the pool 3 times a day, Noah is LOVING it he is swimming like a fish.  I swear it was the goggles, he put them on and started swimming.  It was amazing!!

So we went to "camp" two days last week at Faith Christian Academy (School for kids with different abilities), I have become friends with the director (Ms Tammy) over the past few years, we went to school there a couple of years ago for ABA therapy.  Noah loved it, so we went to camp he did GREAT....it forced me to back off and I hung out with Ms Tammy and helped her with stuff.  Savannah came with us Friday and there were a few more kids a couple of little girls around 5 years old, Savannah helped them with some of their activities so that helped her too, she is so shy anything to bring her out of her shell. There are a couple more week of camp this summer and we are going to go a couple of days. We are going to start back a couple of days a week for school next year, that will really help me with his curriculum and planning.

We have had a great 4th holiday, hope you did too!! Noah has been watching the show "The Biggest Catch" about he crab fishing guys, so dad bought crab legs today...Noah was playing with them he didn't want to eat them.  He kept asking are they alive?? were they alive?? where are their faces?? can I eat them??  do I have to eat them??  He was really cute but he didn't eat the crab meat.